‘Sweet dreams, baby’

Connie Yates, mother of Charlie Gard, begs court to allow her son to die at home

Connie Yates, the mother of terminally ill baby Charlie Gard, arrives at the High Court on July 25, 2017 in London, England. (Photo by Carl Court/Getty Images)

Charlie Gard’s mother Connie Yates appeared in Britain’s High Court again on Tuesday, begging for the right to have her 11-month-old son to be released from the hospital so he can die at home. The baby suffers from a rare genetic condition that causes brain damage and muscle weakness and on Monday his parents gave up their fight to bring Charlie to the U.S. for an experimental treatment they hoped might have improved or extended his life.

At the hearing on Monday, Yates and Gard said an MRI revealed their son is now suffering from muscular atrophy, which would make the treatments in New York City no longer viable. “A whole lot of time has been wasted,” Yates said in a statement.

Chris Gard and Yates have been locked in a five-month battle to fly their son to New York City to be treated by a professor of neurology at Columbia Medical Center. Dr. Michio Hirano said he knew of a treatment that could offer a small hope of improvement for Charlie.

But London’s Great Ormond Street Hospital, which is treating Charlie, said Hirano is bringing false hope to the parents and accused the doctor of never actually even reading the child’s medical records before proposing a treatment, CNN reported.

The hospital wants to remove the child’s life support system, and Grant Armstrong, who represents Charlie’s parents, said, “The parents’ last wish is to take Charlie home.”

“We struggle with the difficulties the hospital has placed in the way of the parents’ wish to have a period of time, probably a relatively short period of time … before the final act in Charlie’s short life,” the lawyer said, reading a statement.

Officials for Great Ormond Street Hospital said the facility would like to fulfill the parents’ request, “if practical.”

Charlie’s parents last words in their public statement were heart-wrenching: “To Charlie, we say: Mummy and Daddy, we love you so much. We always have and we always will and we are so sorry that we couldn’t save you. Sweet dreams, baby.”

Read the full story at The Guardian.


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